A note from Owen

Hi heart family!

I was just telling my new heart bear about my day and wanted to share it with all of you too! Today has been much better than yesterday. I’ve had a lot of gunk in my lungs and the doctors really want to get it out. Yesterday they gave me a new inhaler medicine, did a lot of chest percussion and made me lay on my tummy. It worked a little too well and I had a hard time breathing! Some of the gunk plugged my lungs and the respiratory therapist worked really hard to get it out. It was scary for mommy and daddy but I pulled through like a champ. They needed something called late night “happy hour” to recover though. Today I am feeling like my old self again. I’ve been awake a lot and playing with my lil’ red dog. I am working hard to wean off the ventilator too. They had to add back some support after my little episode last night. I am spending some time on my tummy and I am getting my lung medicines. I asked them to be a little less aggressive today cuz’ it works better for me. 

I have really great news I have been dying to share. Dr. Tran from oncology came to visit us today. He told mommy and daddy that my tumor thingy didn’t grow and I don’t have to get rechecked for 6 more weeks! The doctor was really nice but I’m really really really happy that I don’t have to see him again for awhile. 

Daddy is going home tomorrow and we’re all very sad but we know he will be back every weekend and come any time if I need a procedure. I can’t wait for us all to be home in my new room even if it is yucky hot there! 

I hope everyone has a great weekend. I’m gonna go have Daddy hold me for awhile. 

Love, Owen